Genetic data privacy

particularly with genetic data, uh, and how it might be used to decline health insurance

the genetic information is really hard to use proactively as an individual

I did a number of genetic tests with like celebrity names

the genetics, I think, uh, have further reaching implications than many people realize

where do they draw the line with privacy?

if these companies happen to unfortunately go under for any reason, that stuff gets sold off as assets

Customer's genetic data is at risk

these companies who have all of your DNA data are eventually going to go tits up

They are running my genome against other people in their database.

I disabled my MyHeritage account and got rid of the data.

once you put it out there, it's out there

we don't choose our genetic relatives

DNA tests inevitably reveal information about many other people, too, without their consent.

I would perpetually be dealing with a subpoena.

So many people have had their DNA sequenced that they've put other people's privacy in jeopardy.

More than one million Americans have already published their genetic information

trace you through your DNA, through not even just your DNA, through anybody you're related to

Do we want a society where they can actually do this to people?

in exchange for that, they get your DNA to do with what they want

some already have given DNA information over to the police

they can do whatever the fuck they want with your information

you can opt in and they share data with research studies and research institutions

they also don't get into basically how any of this information is stored or security procedures

can you see a world where basic DNA information about people wouldn't be inherently interesting?

I want to know if they're keeping copies of my information

I'm very, very concerned about who's going to have access to this kind of information.

particularly with genetic data, and how it might be used to decline health insurance

I didn't want my name to be associated

where do they draw the line with privacy?

that stuff gets sold off as assets